Huntington's Disease
Harvard Brain Tissue Resource Center
The Harvard Brain Tissue Resource Center is a federally funded, non-profit organization, that serves as a national resource for the collection and distribution of postmortem brain tissue for medical research into causes and treatment of Huntington’s Disease and other devastating neurological and psychiatric disorders.
McLean Hospital
115 Mill Street
Belmont, MA 02478-9106
Toll Free: (800) 272-4622
Phone: (617) 855-2405
Fax: (617) 855-3199
Email: btrc@mclean.harvard.edu
Web Site: www.brainbank.mclean.org
Hereditary Disease Foundation (HDF)
The Hereditary Disease Foundation is a non-profit basic science organization. One hundred percent of all publically donated funds are directed to the support of biomedical research. Programs include grants and post-doctoral fellowship. Patient information and referrals are also provided.
1427 7th Street – Suite 2
Santa Monica, CA 90401
Phone: (310) 458-4183, Fax: (310) 458-3937
Web Site: www.hdfoundation.org
Huntington’s Disease Society of America (HDSA)
The Society provides written and audio/visual materials pertaining to all aspects of Huntington’s Disease, information and referral to local support groups, social workers, and physicians support for research into the causes, treatment, and cure of Huntington’s disease.
158 West 29th St. – 7th Floor, New York, NY 10001
Toll Free: (800) 345-HDSA, Phone: (212) 242-1968, Fax: (212) 239-3430
Web Site: www.hdsa.org
New England Region
Regional Development Director: Virginia Goolkasian
6 Courthouse Lane Unit 12, Chelmsford, MA 01824
Email: vgoolkasian@hdsa.org
(978) 454-8102, (888) 554-8102
Maine Affiliate
Raima Fernald
6 Ginger Lane, Saco, ME 04072
Web Site: www.hdsa.org/about/chapters-and-affiliates/me.html
Huntington Society of Canada (HSC)
The Huntington Society of Canada has three main programs: research, education, and individual services. HSC promotes both basic and applied research, creates and distributes educational materials, and provides speakers for informational meeting and in-service training. Family members receive support through a network of professional social workers and volunteers chapters.
12 Water Street North, PO Box 1269
Cambridge, Ontario CANADA NIR 7G6
Phone: (519) 622-1002, Fax: (519) 622-7370
Huntington’s Disease Group of Maine
Web Site: www.pccs-nh.com/huntingtons/
Southern Maine Area
Steve Brantley
166 Simpson Road, Saco, ME 04072
Toll Free: (800) 838-7462, Email: sjb9946@aol.com
Central Maine Area
Gordon Harris
1054 Lisbon Street, Lewiston, ME 04240
Phone: (207) 786-2165, Email: GHarris@megalink.net
Web Site: www.pccs-nh.com/huntingtons/